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Bridging the Silos Publishes Research in Neurodiversity Journal (Phase 3: International Survey)

The Bridging the Silos team has published a peer-reviewed article in the journal Neurodiversity based on findings from our international survey on Autistic experiences of menopause with 508 participants. Among other things, the study found a correlation between reported menopause intensity and lack of menopause / autism awareness. The article is free and Open Access on the Neurodiversity website or here:
tinyurl.com/AutMenopause

Bridging the Silos Publishes Research in Autism Journal (Phase 1: Interviews and Focus Groups)

Bridging the Silos has published a peer reviewed journal article on findings from their first phase of research. The article is free and Open Access in the journal Autism: https://doi.org/10.1177/13623613241244548

You can download a Research Brief summary of our findings below:

A captioned audio version of the research brief can be accessed here: https://mediaspace.carleton.ca/media/A_Perfect_Storm_Research_Brief_%28Source%29-2/1_icqzwhg8

About Us

Bridging the Silos: Autistic Menopause Study was a research partnership between autistic advocates and academics studying experiences of menopause by autistic people in Canada, the UK, and beyond.

The project asked how autistic people experience menopause and how they can better access information, services, and supports that might help them. While the first two phases of the project focused on experiences in Canada and the UK, Phase 3, an international survey, included participants from around the world.

Bridging the Silos was funded by an Insight Development Grant from the Social Sciences and Humanities Research Council of Canada (SSHRC) from 2021-2023.

This research was cleared by Carleton University Research Ethics Board A Clearance # 116765 (Phases 1 & 2) and #118935 (Phase 3). Ethical concerns should be directed to Carleton University Research Ethics Board-A (by phone: 613-520-2600 ext. 2517 or by email: ethics@carleton.ca). For all other questions about the study, please contact Miranda.Brady@carleton.ca.

This research was also accepted by Bournemouth University’s Science, Technology & Health Research Ethics Panel in accordance with research ethics code of practice (10.3.6.1).

The Bridging the Silos team included Community Research Associates from Canada and the UK and academics from Carleton University, Canada and Bournemouth University, UK. Top row from left to right, Dr. Miranda J. Brady (Carleton University), Dr. Kelly Fritsch (Carleton University), Rose Matthews (Community Research Associate, UK); bottom row: Margaret Janse van Rensburg (Carleton University), Professor Julie Gamble-Turner (Bournemouth University), Christine Jenkins (Community Research Associate, Canada), Dr. Rachel Moseley (Bournemouth University). Not featured: Professor Stuart Murray (Carleton University).

Co-Production of Knowledge

Bridging the Silos followed a model of co-production between autistic people and acadmics. Read more about our steps of co-production in the brief below; an audio version follows.

https://mediaspace.carleton.ca/media/Research+Brief+2+Autistic+Menopause+Phase+1/1_ttmlshgm